Imagine if you will of a time or a place when life as YOU know it ceases to exist but only in dreams. Imagine one day you can’t wait for that hug or that gentle embrace from your children and grandchildren. Then imagine that the next day you still want that but you now dread the pain that it brings. That same hug and gentle embrace causes you so much pain that you have to turn away.
Imagine if you will a time or a place when life as YOU know it ceases to exist but only in dreams. Imagine one day you can’t wait to see he smiles and the expressions of those around you, your kids laughing and your granddaughter smiling in her school pictures. Then imagine that the next day you still see them but only in your mind’s eye, those beautiful smile and eyes so wide. All you see now is a blur and two of them all. Those same smiles you see in your mind as you turn away as a tear runs down your face so no one will know that you can’t see them the way they see you.
Imagine if you will of a time or a place when life as YOU know it ceases to exist but only in dreams. Imagine one day your digging holes and building gardens that smell of the dirt and the sweet smell of the roses you just planted. What a beautiful site and you did it all by yourself. Then imagine that the next day you need help to get up or to sit down. You can’t walk without a wall and every step you take, takes your breath away because of the pain. This you can’t hide as hard as you try.
Imagine that through all of this you try everything you can but that cure your seek seems to only exist in dreams. There is one last hope and for this you need help to get go back before your dreams. This journey you take, you are not alone nor have ever been. Many are here and always will be. This journey is scary but you will succeed and as you always say, “put on your big girl panties and deal with it” I know you will make it and these dreams your reality once again….
I wrote this from what I have seen my Gwen loose over the last few years and what she and I and our entire family want to give back to her. We can’t do this alone. We need all of your prayers and support. There are so many people that have CIDP and do not even know it or they are misdiagnosed. Part of what Gwen wants to come out of all of this is awareness. We need to educate ourselves and we need to help find a cause and then a cure. For if we cure on neuropathy it can lead to a cure of many and not just CIDP but MS, GBS and ALS to name a few.
So please as you read this think of sharing what you read and saying a prayer and if your can help Gwen on her journey because at the end she and I will indeed pay it forward in helping others as we always have in the past.
God Bless each of you and all of those to whom you are connected or will ever be connected to.